I'm not sure where you're based, but I've heard of Usher's Syndrome after hearing a talk from someone named Molly Watt, who also has Usher's Syndrome. It might be worth dropping her a line, as in her line of work she might be able to either give some advice, or point you towards someone in your situation that can help.
I'm not sure where you're based, but I've heard of Usher's Syndrome after hearing a talk from someone named Molly Watt, who also has Usher's Syndrome. It might be worth dropping her a line, as in her line of work she might be able to either give some advice, or point you towards someone in your situation that can help.
https://www.mollywatt.com/